PNSD as opposed to PSSD

Post-SSRI sexual dysfunction (PSSD)[1] is a name given to a reported iatrogenic sexual dysfunction caused by the previous use of selective serotonin reuptake inhibitor (SSRI) antidepressants (Wikipedia).  If you have persistant sexual dysfunction from taking SSRI antidepressants (PSSD) there is a support group on Yahoo for you.  It is found at:

http://health.groups.yahoo.com/group/ssrisex/

My blog, “The Thrill is Gone”, is intended specifically for those of us who have suffered sexual dysfunction from taking neuroleptics, more commonly known as “antipsychotics”.  Having searched the internet for several years, I have not found one support group for those of us who have been damaged in this way, although I’m sure there are many who have been.  The Physician’s Desk Reference mentions sexual dysfunction as a side effect of a number of neuroleptic (“nerve-seizing”) drugs although it is difficult to find information on any studies done in this area.  I have only found a few relevant articles, so perhaps most of what is known is locked up in medical journals that the average individual doesn’t have access to. 

For brevity I am going to refer to what I have as PNSD, for “Post Neuroleptic Sexual Dysfunction”.  For me it is not only persistant, but permanent.

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About lindakay1948

I am what is known as a psychiatric survivor. I've had three breakdowns, each occurring after SEVERE SLEEP DEPRIVATION. I was forced to take neuroleptics each time, but have been off of them now for over twenty eight years. The problem is that, even though I took these drugs for very short periods of time, they left me with permanent damage. My first breakdown came in 1975, before I had any children. I was on Haldol and Cogentin for about four months, then took myself off these drugs after the psychiatrist refused to do it, telling me I would have to be on them for the rest of my life. After I went off of them I realized that I had lost the feeling in my saddle area that made it possible for me to become sexually aroused. I also didn't understand why I couldn't feel when I had to urinate until there was strong pressure in my abdomen. I wondered if this numbness would be permanent, but was relieved when, after two years, the feelings came back to some degree. (However, they were never to be as strong as they had been.) Well, time went by, and I married and had two children, one in the hospital and one at home, both without anesthesia. The feelings I had seemed intact until about a month after my second child was born in 1981. I was a nursing mom, did my own diapers, and worked very hard, often into the night. My baby seemed to have colic, both of my children woke me up over and over at night, and I could not get them to sleep at the same time during the day. So I didn't sleep for about a week. I started to exhibit psychotic symptoms again, was taken to the hospital, forcibly drugged, and labled a "chronic paranoid schizophrenic". Again I took the Haldol and Cogentin for a couple of weeks, then flushed it down the toilet. Again I had lost all my sexual feelings and had to remind myself to urinate. After a couple of years I began to feel just a little. Then a major family crisis came along in 1983 over which I didn't sleep for about a week. I would have taken a sleeping pill if I could have, but did not have the opportunity until it was too late. By that time I thought I could do anything. I felt like a superwoman. Well, I was only in the hospital for three days, and I immediately flushed the Haldol and Cogentin down the toilet when I got home, but it was too late. I felt as though I had sat on a big piece of ice that I couldn't get off of, and it wouldn't melt. 'Still feels like it never will. I have (literally) sat on this secret for over twenty eight years. At first I thought it must be psychosomatic, something having to do with my anger, and went though extensive therapy. Then, in 1993, I found an M.D. who would actually listen to me, and he put me through some medical testing. When he had finished he told me that I had apparently lost the feeling in my saddle area. In other words, I have a permanent saddle block, or PERMANANT GENITAL ANESTHESIA. I am blessed with a wonderful, understanding, husband, whom I've been married to for thirty three years. We have two grown children, who are both married, and two wonderful grandchildren. I'm AMAZED, because I was once afraid to marry and have children. As I was working toward my BA in Psych, I was told that mental illness is inherited. Yes, it seemed to run in my family. My great grandmother died in an institution and my mother was on psychiatric drugs for most of her life, until she developed Tardive Dyskinesia (brain damage) from them just before she died. I thank God everyday for my family, but I believe that it is important for me to share my story with the public now because so many young people are being given the drugs I was given, and other similar ones. I have heard about people who are on anti-depressants reporting permanent sexual side effects, but I wonder how many have experienced them after being given the major tranquilizers (neuroleptics). The damage that these drugs have done to me has been DEVASTATING. Is it any wonder that there are so many angry, violent, depressed, and suicidal young people when so many of them are being put on drugs they can't "say no" to? Country: United States Occupation: Montessori Teacher
This entry was posted in sexual dysfunction, antipsychotics, neuroleptics, genital anesthesia, SSRIs. Bookmark the permalink.

3 Responses to PNSD as opposed to PSSD

  1. paul says:

    little doubt neuroleptics cause sexual problems. Forced treatment in early seventies for a crime I did not commit. No history of delusion or any schitzophrenic symptom. Three year treatment forced. Drugs used as threat and punishment.
    After discontinued took two years for erection hard enough for intercourse. Also permanent none forcefull ejeculation last 39 years.
    Furthermore found sexual potancy started to decline reletaly early in life.
    Suspect dammage related to far more than low dopamine high prolactin as this ok after a while.
    Suspect permanent receptor reduction or dammage in suseptable parties
    Excuse any errors done on small touch keyboard of mobile phone
    paul

  2. LindaKay1948 says:

    Thank you for your response. I am so sorry to hear of what you have been through. You may have noticed, if you’ve read my story, that the first time I withdrew from the drugs it took me about two years before I started to feel again. I am curious as to whether you felt a numbness like I did.

    I suspect that what I have is permanent pudendal nerve damage, perhaps via the sciatic nerve, from being forcibly injected in my buttock. I think the damage is like a saddle block given to a woman giving birth, only both of my children were born naturally, without any drugs, and I’ve never heard of a saddle block being permanent. This damage was inflicted on me about two years after the birth of my second, and last, child, so I know it didn’t have anything to do with childbirth.

  3. paul says:

    melleril. and depixol can definately cause sexual dammage with partial recovery after a long time but things never as good as before. For example permanet none forcefull ejeculation reduced firmness and sensation. The sad thing is we in england live in a hypocritical society. where these drugs. at least in the seventies and no doubt still were used as a chemical straight jacket for those that were in no way mentaly ill and as a threat and punishment.
    A country of sick government that meddles with and critisizes foreign nations. when their own standards behind closed doors stinks.
    Try and get figures for how many deaths. happenef or were caused in certain institutions over a specific period of time and this becomes clear. A country. leadership for example that detained without trial and tortured persons in n ireland some who had no involvment in terrorism whatsoever. A similar thing has happened in iraq where compensation is now being paid.
    Unfortunately those who were abused under the excuse of mental health both the genuiy ill and those given drugs as a chemical straight jacket for demanding their rights recieve no justice. Personally I would like to see the manafacturers of these poisons who disgise true side effects to be forcably used as drug guiney pigs together with some of the excuse for medical staff that have abused drugs to cause tardif dyskinasis sexual and fertilty problems brain dammage and death

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